Diabetes Registry of Pakistan: type1 diabetes (DROP-1) 

Background
Type 1 diabetes is an important medical condition involving children and adolescents. Evidence based data are still unavailable in several countries and it is important to know the actual number of people suffering from this type of diabetes in Pakistan.
Aim
The aim of this registry is to estimate the number of type1 diabetic subjects in Pakistan.
Method
This nationwide multicenter registry was designed for all provinces and capital city of Pakistan. All Pakistani individuals living in Pakistan with newly or previously diagnosed type 1 diabetes were included in registry. Registry was organized by Baqai Institute of Diabetes and Endocrinology (BIDE) with the collaboration of Health research advisory board(HealthRab) of Pakistan.  Ethical approval for registry was obtained by the Institutional Review Board (IRB) of BIDE. Data was filled by health care professionals on the structured questionnaire. Website and online nationwide data entry portal was established for the collection of data.
 
Results
Out of 1439 patients registered with type 1 diabetes, 803 (55.8%) were male and 636 (44.2%) were female. Most of the subjects were diagnosed at the age of 11-15 years (22%) and least were diagnosed at the age ≥26 (11%), while, at the ages ≤5, 6-10,16- 20, 21-25 only 12%, 19%, 20% and 13% were diagnosed with type 1 diabetes respectively. Mean duration of diabetes was 12.5 ± 8.2 years.  Height, weight and body mass index (BMI) were measured and their mean was 152.3 ± 15.9 cm, 43.5 ± 14.9kg and 18.3 ± 3.8kg/m2 respectively. Mean systolic blood pressure was 107.0 ± 14.6 and mean diastolic blood pressure was 73.4 ± 10.4. More than half of the participants have family history positive for type 2 diabetes. Mean fasting blood sugar (FBS) was 267.3 ± 112.2mg/dl, random blood sugar(RBS) was 342.0 ± 130.0mg/dl and hemoglobin A1c was 10.2 ± 2.4% in registered individuals. 
Discussion
Development of type 1 diabetes registry is extremely important for a resource constraint society, like Pakistan. This will further help in legislation and policy making to design appropriate strategies, required for the integrated and comprehensive management of the condition.