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Feb 14, 2017

BTS 2017

The role of the clinical research nurse within Nephrology & Transplant: Reflections of a Research Nurse team

;

Johnson N.;

Rabuya M.;

Gare R.;

Hare N.

research

nursing

renal and nephrology

Abstract

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Keywords

research

nursing

renal and nephrology

Abstract

Introduction: Research activity has grown over the preceding ten years, becoming embedded as core NHS business. Research nurses are clinical staff with a specialism in caring for the research participant, acting as their advocate and ensuring safety during participation (Miklos 2016). This diverse role includes study coordination, clinical implementation & data management (Hastings et al 2012). Knowledge of UK regulatory requirements, ethical approval and clinical policy are imperative. Methods: A critical reflection of experience using the Johns reflective model (1995) as a facilitator. Results: Integrating research into standard clinical pathways enables renal patients to make informed decisions about participation without feeling coerced. Research nurses’ co-ordinate, communicate and liaise with satellite centres and a wide team of professionals including doctors & specialist nurses to manage care and gather data. This long term patient group often have complex care pathways across a number of specialties requiring multi-disciplinary involvement. Renal research nurses provide a common link across these areas to improve patient outcomes. Offering flexibility in appointment schedules may improve the research experience and retain study participation. Some challenges include time pressures, ethical issues with pre-transplant consent and ensuring research follow-ups are conducted as per protocol. Discussion: Research nurses are pivotal to the recruitment of participants, providing safe and high quality patient care & gathering reliable research data. This is a unique role requiring continuous collaboration and support from Research Associates and Data coordinators to ensure efficiency. Service evaluation is being undertaken to understand the research participant’s perspective. Miklos, L., (2016), The Nephrology Clinical Research Nurse Role: Potential Role Conflicts, Nephrology Nursing Journal, Vol 43: 257-261 Hastings C et al, (2012), Clinical Research Nursing: A Critical Resource in the National Research Enterprise. Nursing Outlook, 60: 149-156. Johns C (1995) Framing learning through reflection within Carper’s fundamental ways of knowing in nursing. Journal of Advanced Nursing. 22: 226-234

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All rights reserved.