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Jun 28, 2018

MASCC/ISOO Annual Meeting on Supportive Care in Cancer

02 / MODELS OF CANCER CARE - A COMPREHENSIVE RESEARCH PROGRAM IN THE MANAGEMENT OF CANCER AND TREATMENT-RELATED SYMPTOMS AND HEALTH-RELATED QUALITY OF LIFE

;

Presenting: Jarden;

M.. Co-authors: Piil;

K.;

Overgaard;

D.;

Nielsen;

D.;

Kjeldsen;

L.

research program

cancer

models of cancer care

symptom management

patient involvement

Abstract

Abstract

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Keywords

research program

cancer

models of cancer care

symptom management

patient involvement

Abstract

Abstract title Models of Cancer Care - A comprehensive research program in the management of cancer and treatment-related symptoms and health-related quality of life Co-authors M. Jarden1, K. Piil2, D. Overgaard3, D. Nielsen4, L. Kjeldsen1. 1Copenhagen University Hospital - Rigshospitalet, Hematology, Copenhagen, Denmark. 2Copenhagen University Hospital - Rigshospitalet, Oncology, Copenhagen, Denmark. 3Metropolitan University College, Nursing, Copenhagen, Denmark. 4Herlev-Gentofte Hospital, Oncology, Herlev, Denmark. INTRODUCTION This research program is an initiative that can guide future directions within disease and treatment-related symptom prevention, control and management across the cancer disease trajectory. Models of Cancer Care incorporate user involvement, behavioral and biological aspects of symptom research to improve clinical outcomes. OBJECTIVES The aim of “Models of Cancer Care” is to develop knowledge and new strategies to manage cancer and treatment-related symptoms in partnership with patients and family, and to enable decision-making to give more choice to people with cancer. Further, to examine the effect of applying different care and intervention approaches incorporating patient involvement in managing multiple symptoms and reduce the symptom burden and enhance optimal adherence to treatment and quality of life. To improve symptom assessment and management skills of health care professionals and patients. We hypothesize that by actively engaging patients and families in the research process and in management of multiple symptoms during cancer treatment will reduce the symptom burden, ensure optimal adherence to treatment and improve quality of life. METHODS Six MODEL-CARE projects across age groups and cancer diagnoses applying different supportive care interventions with cross-cutting perspectives: • PAS: Patient Ambassador Support for Newly Diagnosed Patients with Acute Leukemia – a feasibility controlled trial • FAMCARE: Family Caregiver Ambassador Support for Family of Patients with Hematological Malignancy – a feasibility controlled trial • PACE-Mobil: Engaging the Older Cancer Patient. Patient Activation through Counseling, Exercise and Mobilization - a randomized control trial • NEAT Decision: Needs Assessment and Decision-making Tool in Clinical Practice to enhance Patient Involvement in Head and Neck Cancer Rehabilitation - a randomized controlled trial • CARES: Family and Network Consultations. Addressing Symptoms and Concerns in Patients with High-grade Glioma and their Families – a feasibility controlled trial • PRO-SYMPTOM CARE: Prototype Symptom Model to Understand and Manage Multiple Cancer Symptoms and Symptoms Clusters - a longitudinal observational and intervention trial RESULTS To be published CONCLUSION This current research program (2017 – 2021) will provide new knowledge and innovative strategies for managing disease and treatment-related symptoms and thereby improve patients, families and caretakers’ health-related quality of life during and after cancer treatment.

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© Copyright 2019 Morressier GmbH.
All rights reserved.