Collaborative care amongst cancer caregivers, patients and heatlhcare providers: A literature review Co-authors C. Lee1, C. Gonsalves2, W. Pickrell2, R. Barker2, J. Wong2,3. 1Ryerson University, Nursing, Toronto, Canada. 2Southlake Stronach Cancer Centre, Oncology, Newmarket, Canada. 3University of Toronto, Radiation Oncology, Toronto, Canada. Abstract text Introduction: Self-management refers to the ability to manage the symptoms, treatment, physical and psychosocial consequences and lifestyle changes while living with chronic conditions. For many cancer patients, self-management requires collaborative effort amongst patients, their caregivers and healthcare providers. This study aimed to describe current knowledge concerning collaborative care involving caregivers, patients and healthcare providers. Methods: A narrative literature review was conducted in PubMed and CINAHL using relevant keywords in mid-2018. Searches were limited to English language and studies of the adult population. Results: Ninety matches resulted, 34 articles were relevant. Of the 34 articles, 2 were non-empirical, 20 were descriptive studies and 9 included an intervention on caregivers. A majority of studies included both patients and their caregivers(n=14). Very few included patients, caregivers and healthcare providers(n=5). The most number of studies described the caregiver’s experience(n=6) or communication with healthcare providers(n=6). Of the nine intervention studies to support caregiving, three focused on education, two on communication, two on decision-making, one tested the use of a coordinator role and one on personalized medicine. Outcomes of intervention studies were primarily related to mental health(e.g., burnout, n=7), quality of life(n=4) of both patients and caregivers and physical health of patients(n=4). A majority of these studies reported improvement post-intervention(n=5). Conclusions: Findings validated that, supportive interventions improved both patient and provider outcomes. A comprehensive framework is needed to support the development of collaborative partnership with caregivers, patients and providers. In addition to patient and caregiver outcomes, evaluation of outcomes related to collaborative partnership and process is needed. Keywords caregiver patient care team collaboration literature review
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