USABILITY OF AN ONLINE APPLICATION FOR MONITORING CANCER PATIENT-REPORTED BURDEN OF SIDE EFFECTS IN DAILY CLINICAL PRACTICE
Corina van den Hurk, Mies van Eenbergen, Floortje Mols, Monique Becker, Heidi van Doorne-Nagtegaal, Jurrian van der Werf, Lonneke van de Poll-Franse
Therapy outcomes and compliance can be improved through active monitoring of patient-reported (PRO) side effects. To improve symptom management in Dutch oncological care, we developed an online self-reporting application that presents patient-tailored side-effects information, and allows patients to report and visualize their own side effect scores. Here, we report on usability and use of the application.
Usability of our application (“BijKanker”) has been evaluated in 7 Dutch hospitals. At least once a week patients reported on 12 standard side effects, based on the Dutch ‘nursing problem analyses’. During the first log-in and 4 months after initiating their systemic therapy, patients completed a questionnaire about information provision and their experiences with the application. Personalized feedback about the burden of side effects was provided by a longitudinal graph for patients and health care providers.
Patients (n=99) reported in total 1,661 side effects (mean= 10 times data entrance per patient) with highest incidences for neuropathy (20%), nausea (15%) and diarrhoea (13%). Patients rated BijKanker as understandable (74% positive, 23% neutral) and moderately easy to use (33% positive, 33% neutral) and thought the feedback function was important (57% positive, 21% neutral).
Active monitoring of side effects through an online self-reporting application is feasible in Dutch oncological care. Patients experienced BijKanker as a useful tool for self-care management. Current development of the application focusses on allowing patients to report on a treatment-tailored list of side effects, specified per type of cytotoxic agent(s), using the PRO-Common Terminology Criteria for Adverse Events (PRO-CTCAE) for terminology and definitions.