We use cookies to ensure that we give you the best experience on our website Learn more

Jun 13, 2019

MASCC/ISOO Annual Meeting on Supportive Care in Cancer

“HANGING ONTO MY JOINTS”: A QUALITATIVE STUDY TO EXPLORE THE EXPERIENCE OF OSTEONECROSIS IN TEENAGERS AND YOUNG ADULTS LIVING WITH AND BEYOND CANCER.

;

osteonecrosis

teenagers and young adults

survivorship

quality of life

qualitative

late effects

Abstract

Abstract

thumbnail

Keywords

osteonecrosis

teenagers and young adults

survivorship

quality of life

qualitative

late effects

Abstract

Introduction: Osteonecrosis (ON) is a painful, disabling and long-lasting side effect of cancer treatment in teenagers and young adults (TYAs, aged 16 to 24 years). It involves the degeneration and collapse of affected joints, and has no cure. However, little is known about the impact of ON on affected TYAs. This study therefore aimed to explore the experience of ON in TYAs living with and beyond cancer. Methods: This single-centre study was based at a specialist centre for TYAs with cancer in England. Eligible individuals were those who had received (or were continuing to receive) treatment for any form of cancer between the ages of 16 and 24 years; had been diagnosed with ON of any anatomical region; and were aged between 16 and 30 years at the time of recruitment. Data were collected via semi-structured interviews, and analysed using thematic analysis. Results: Eight young people with ON participated in the study. Thematic analysis produced four themes related to the experience of cancer-related ON in TYAs: loss, uncertainty, “juggling act” and psychological wellbeing. Participants found the impact of ON to be entirely negative. Conclusions: This study is the first to explore the experience of ON in TYAs living with and beyond cancer. Findings suggest that ON has a wide-ranging, negative impact, producing additional challenges and uncertainties in the context of lives already disrupted by cancer. Future research into multiple aspects of cancer-related ON in TYAs is required, in addition to improvements in the information and support provided to those with the condition.

Discover over 20,000 new abstracts, posters and presentations from leading academic conferences every month. Stay on top of the latest findings, methodologies and discussions happening in your research field around the world.

Company

Legal

Follow us

© Copyright 2019 Morressier GmbH. All rights reserved.

© Copyright 2019 Morressier GmbH.
All rights reserved.