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May 14, 2019

16th World Congress of the European Association for Palliative Care

Home Care for End-of-Life AYA Cancer Patients

aya cancer patients

home care

palliative care

Abstract

Abstract

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Keywords

aya cancer patients

home care

palliative care

Abstract

Aim: Adolescents and young adults (AYA) with cancer need dedicated physical and psychosocial management and care. Especially advanced patients with severe symptoms and suffering require enough palliative management toward the end-of-life. But their condition may make it difficult to continue home care. The aim of this study is to know the real management and care at home of terminal AYA cancer patients. Methods: A survey was sent to homecare physicians who have advanced AYA patients with cancer referred by National Cancer Center Hospital from 2013 to 2017. Questionnaire covered the demographics and the clinical training of respondents, their clinical homecare-experiences and difficulties of terminal AYA patients with cancer. Results: Forty out of 75 were responded and we analyzed on data from the 36 homecare physicians. The average age of respondents was 50.1 and their average clinical experiences are 23.1 years. Most frequent management of end-of-life home care for AYA cancer patients included pain control by opioid (96%) and others were other symptom management including ascites/pleural effusion control, terminal sedation, psychological support for patients and caregivers. The devices used at homecare is central venous port placement, patient-controlled analgisic system, Oxygen, urological catheter, draining tube placement for ascites/pleural effusion, draining tube placement for bowel obstruction including PEG/PTEG. Total number of AYA cancer patients followed by homecare physicians are 52 (1.4 /year/physician) and the total number of death of AYA patients at home are 27. Homecare physician felt difficulties about advance care planning/end-of-life discussion among AYA cancer patients and caregivers. Concludsion: Homecare of terminal AYA patients are mostly performed as same as hospital. Homecare physicians face difficulties in ACP/EOLd. Further research is necessary about terminal AYA patients with cancer in order to spend good time at home.

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© Copyright 2019 Morressier GmbH.
All rights reserved.