Introduction: Parents of children newly diagnosed with Acute Lymphoblastic Leukaemia (ALL) experience a high care burden. In our previous research parents described receiving minimal support to facilitate the acquisition of new knowledge. We developed an online intervention named HELP (Harmonising Education about Leukaemia for Parents) to facilitate easy access to information about leukaemia.  
Objectives: To develop and usability test an information intervention for parents of children with ALL. 

Methods: HELP incorporates text, links to resources and videos filmed with health professionals (HCPs) and parents. It was developed using a stepwise approach. An initial prototype of HELP was used to inform meetings with HCPs and parents. Feasibility testing was conducted with a diverse group of HCPs and two parent representatives. Parents of children with ALL (n=7) were recruited to undertake usability testing: incorporating thinking aloud while navigating HELP and the System Usability Scale questionnaire. HELP underwent two periods of refinement. 

Results: Initial development of HELP was slow, engaging and recruiting HCPs was challenging. Filming videos with parents and HCPs, proved worthwhile as parents responded favourably to videos during usability testing. Data reports on user performance and parent satisfaction were collected. These were positive about content, less regarding style. Overall, parents stated that they would have found the resource useful.

Conclusions: The HELP website has been developed after extensive engagement with parents and input from HCPs. It has now undergone usability testing. We now have a resource that we are confident will meet the information needs of parents of children with ALL.

01 / DEVELOPMENT AND USABILITY TESTING OF ‘HELP’: AN INFORMATION INTERVENTION FOR PARENTS OF CHILDREN WITH NEWLY DIAGNOSED ACUTE LYMPHOBLASTIC LEUKAEMIA